Finally got my pre op MRI pics to load!

Will update later, but I finally got my MRI images to load...which I think is exciting :)

These are my pre-op images, I will try to get a post op disk....

Just thought it was interesting...that's all.. Talk to you later :)

Moe

Week 3: Update

Well,

Thought it was time to get on here and give y'all an update.

Feeling better than crappy, but not feeling the best. Still having headaches when I change positions.
I take pain killers every day, except when I am driving, and the whole day, I wait for the moment when I can relieve the pain from my head. And it's not my neck, because I have almost full mobility of it now. I mean, it's sore from driving and I need a day of rest between driving days, but it doesn't hurt as much as these headaches that I am having. I have been instructed by both the ER doc and my surgeon, Dr. Lovely, to increase my intake of caffeine and to definitely take my pain meds when I need them. I have an MRI scheduled for next Wednesday to make sure that the fluid he saw on my CT scan hasn't gotten bigger.

The only thing I keep getting frustrated about is that I had this surgery to rid myself of these debillitating headaches, and I came out with ones that are worse. Don't get me wrong, I got many benefits; I lost the feeling that I was drunk while I was walking due to lack of balance, my numbness and tingling my face and hands, and many more puzzling symptoms.Also, I wanted to get off a lot of the meds I am on, ( Topamax, Amitrypiline, Valium, Hydrocodone, Fioricet, two courses of steroids, the list goes on)

Well, seeing as I am falling asleep from all the meds that I'm on  I 'm going to cut this off.

I promise the next blog will be longer and I will write it during the day when I am not so drugged up....

God Bless everyone! :)

Moe

ER time!

Hello all,

So, this post is a little late, but I haven't had much time between doctor's appts, getting ready for school and sleeping, so here we go:

In a previous post, I mentioned that I was having headaches again. Well last Sunday, I decided enough was enough, and we headed to the ER to try to figure out what was going on.

We arrived at the ER, and waited in the waiting room, and people were obviously being triaged based on their complaints, rather than their order of entrance because I was triaged pretty late after I came in, it took about 2 hours after I arrived to get into the actual Emergency Department.

We got into the ER, I got into a gown, and a nurse came in and got my history....yes I am nauseous, no I don't feel unsafe in my home....yes I have pain....la la la la...blah blah blah...

It seemed like forever until the doc came in. I told him what was going on, that I had had surgery two weeks prior and I was having positional headaches ( whenever I sat up or stood up) and they were pretty much overtaking me. He did his usually doctor things, listened to my heart and lungs, asked me the same questions the nurse had asked me,told me he was going to call my surgeon and then he left.  Oh, he also asked if I wanted something for pain, and I responded with a "yes please", because this headache seemed to be overtaking me at this point.

It was good that I was blessed with a wonderful nurse, Gloria, who liked to laugh and laughed at the fact that  my brother and I were threatening each other with medical procedures ( we are both EMTs) and quizzing each other on EMT stuff to pass the time. ( Another nurse actually stuck her head in to see if a doctor was in there....lol)

I got some good pain meds, and some Zofran ( a miracle drug which made my nausea disapear) The pain meds made me a bit loopy, but they made my headache go a away for a few sweet hours.  My surgeon wanted a CT scan and some blood work, so they did that, and we waited, and waited and waited......

They didn't find anything immediately dangerous, so they sent me home with some Zofran, and some pain meds and told me to talk to me NS the next day,

The next day, Dr. Lovely said that he did see some fluid, but he didn't think it was enough to cause my headaches, but he did want to see me  the next day.

SO, the next day ( this being Tuesday) I went to Dr. Lovely's office, and he told me that me incision looked good, and that the small build up looked like it could be anything, and since I was so newly post op, it could be blood, or it could be a small leak of CSF ( Cerebrospinal Fluid) but he put me on a course of steroids for
 6 days to see if he could get any fluid that

So here I am. hoping these steroids help or else it's back to the drawing board. Dr. Lovely is telling me to be patient, but let me tell you, it's REALLY hard....

Ok, so that's the story for now.....

I hope you all are well!

Maureen

I forgot to mention: Chiari Walk 2012!

Chiari Walk 2012! September 22, 2012!!

Mark your calendars!!

Here is a link to the site to sign up, there is one in each state, but I will be at the one in NY!

:)

http://conquerchiari.org/ccwaa/sites-2012.html

The return of the headaches....

So, as you know, I had this surgery as a way to alleviate my debilitating headaches that I have been having every day for the last 6 months. I thought that those headaches were the worst things that could ever happen.
Well, I was wrong, I have been having these headaches since Monday, and they are, by far, the worst headaches that I have ever had. I don't think that someone's head could hurt more. Maybe if someone was sawing into your head while you were awake, and then pouring salt into the wound. That's pretty much what these headaches are comparable to.

What is frustrating to me is that I had this surgery to get rid of this pain, and I had about a week of no headaches, and then they come back with a vengance, as if to say " did you miss me? "

I, in my heart of hearts, and with my immense googling skill, think I may have a CSF leak, because I also have a bump on the back of my head, that is soft, not painful, but it's getting bigger every couple of days. Along with the fact that standing up makes me feel like someone ninja kicked me in the head.

It seems like I can't get through something without setbacks. But that's life, you just have to play the hand you are dealt.

Hope you all are well.

Maureen

Update

Hello everyone!

I just wanted to let everyone know that I am still alive, and relatively well.

I am still dealing with these headaches that I mentioned in the last post, and I think that I may just have to get them checked out, because they are starting to become slightly unbearable.

My stitches are out! It's nice to be able to shower normally, and know that you aren't being held together by string. ( well, you know what I mean) I have never had stitches though, so the removal was a new experience  for me, and the whole area has been really itchy afterwards. It's taken a lot of willpower to leave it alone...I should have probably received a cone or something from the doctor's office so I couldn't touch it LOL :p

Anyway, that's pretty much all for now. I'm starting to nod off since I had to take 2 vicodin to get this headache to bearable tonight. Hope everyone is well!

Love ya,

Maureen